Welcome
KMT2C Foundation is closed from May 15 to August 2025.
We look forward to seeing our families this Fall!
Welcome
KMT2C Foundation is closed from May 15 to August 2025.
We look forward to seeing our families this Fall!
KMT2C Foundation Board Members
Jordana Koch, Board President & Founder
Dr. Alisa Mo, MD, PhD Board Medical Director
Dr. Matthias Koch, Board Director, Chief Scientific Officer
Jordana Koch has over thirteen years of industry experience within FinTech and bio-pharma operations. Start-up involvement has been from seed stage to fully funded with pharmaceutical backing. Teams have included C-suite members and senior executives from North America, EMEA, LATAM, Switzerland, APAC, and India. Jordana is the founding me
Jordana Koch has over thirteen years of industry experience within FinTech and bio-pharma operations. Start-up involvement has been from seed stage to fully funded with pharmaceutical backing. Teams have included C-suite members and senior executives from North America, EMEA, LATAM, Switzerland, APAC, and India. Jordana is the founding member of the KMT2C Foundation. She is a long-standing Autism Spectrum Disorder and 2E (Twice Exceptional) advocate. She also serves on the Parent Genetic Family Advisory Council at Texas Children's Hospital.
Dr. Matthias Koch, Board Director, Chief Scientific Officer
Dr. Alisa Mo, MD, PhD Board Medical Director
Dr. Matthias Koch, Board Director, Chief Scientific Officer
Matthias Koch is an Assistant Professor for Biology at Texas A&M University, where his lab studies how the clinical important bacterial pathogen Pseudomonas aeruginosa interacts with the physical environment of the host to regulate its pathogenicity.
Matthias found his passion for diseases related research and medical care during a communi
Matthias Koch is an Assistant Professor for Biology at Texas A&M University, where his lab studies how the clinical important bacterial pathogen Pseudomonas aeruginosa interacts with the physical environment of the host to regulate its pathogenicity.
Matthias found his passion for diseases related research and medical care during a community service gap-year after high school at the University Hospital in Freiburg, Germany.
Matthias started his career by exploring the world of astro physics, particle physics, and computer science, which earned him a MSc in Physics. Intrigued by the world of microbes and the molecular processes in the cell, he went on to apply his knowledge about physics to biological systems, for which he received a PhD with summa cum laude in Biophysics at the Department of Microsystem Engineering at his home university. He finally fostered his love for biology and diseases related work during a Postdoc in the Department for Molecular Biology and the Lewis-Sigler Institute for Integrative Genomics at Princeton University, where he made the remarkable discovery that bacteria have a sense of touch similar to humans to regulate their virulence related genes to their mechanical environment in the host.
Matthias has received numerous conference awards, the Wolfgang Genter Early Career Award for his PhD thesis, a National Institute of Health (NIH) Maximizing Investigators’ Research Award (MIRA), and published his work in prestigious journals such as Science, Nature Photonics, Nature Microbiology, the Proceedings of the National Academy of the Sciences of the United States of America (PNAS), and more.
Dr. Alisa Mo, MD, PhD Board Medical Director
Dr. Alisa Mo, MD, PhD Board Medical Director
Dr. Joshua Shaevitz, Board Director, Strategic Long-Term Planning
Alisa Mo received her M.D., Ph.D. at Johns Hopkins University School of Medicine in Baltimore, Maryland and is currently a Child Neurology resident at Boston Children’s Hospital. She is interested in better understanding the genetic and epigenetic basis of neurodevelopmental diseases, with a particular focus on defects in chromatin-related genes.
Dr. Joshua Shaevitz, Board Director, Strategic Long-Term Planning
Dr. Joshua Shaevitz, Board Director, Strategic Long-Term Planning
Dr. Joshua Shaevitz, Board Director, Strategic Long-Term Planning
Joshua Shaevitz is Professor of Physics and Biophysics in the Department of Physics and Lewis-Sigler Institute for Integrative Genomics at Princeton University. He did undergraduate work at Columbia University in New York and received his Ph.D. in Physics from Stanford University in 2004. Prior to his appointment at Princeton, he was a Mi
Joshua Shaevitz is Professor of Physics and Biophysics in the Department of Physics and Lewis-Sigler Institute for Integrative Genomics at Princeton University. He did undergraduate work at Columbia University in New York and received his Ph.D. in Physics from Stanford University in 2004. Prior to his appointment at Princeton, he was a Miller Research Fellow at the University of California, Berkeley. Shaevitz's work focuses on precision measurements in a variety of biological systems, focusing on topics related to cell shape in bacteria, active matter and pattern formation in groups of moving cells, and the quantification of animal behavior. He is the recipient of several awards and honors, including a National Science Foundation CAREER Award, an APS Fellowship, and a Presidential Early Career Award for Scientists and Engineers (PECASE), among others. He also serves as co-Director of the Center for the Physics of Biological Function and is the Director of Graduate Studies for the Graduate Program in Biophysics at Princeton University.
Alyssa Tran, Global Director of Regulatory Affairs & Compliance
Dr. Joshua Shaevitz, Board Director, Strategic Long-Term Planning
Alyssa Tran, Global Director of Regulatory Affairs & Compliance
Alyssa Tran has extensive clinical research experience with rare diseases through many capacities and roles servicing in the academic medical center area. Her knowledge and experience encompass FDA regulated trials, investigator initiated studies and longitudinal, natural history studies. Currently serving as a Senior Regulatory Affairs
Alyssa Tran has extensive clinical research experience with rare diseases through many capacities and roles servicing in the academic medical center area. Her knowledge and experience encompass FDA regulated trials, investigator initiated studies and longitudinal, natural history studies. Currently serving as a Senior Regulatory Affairs Associate at Baylor College of Medicine (BCM), she leverages her clinical research experience with regulatory affairs and research coordination, logistics and planning of clinical research operations, along with research compliance, community engagement, in addition to on-boarding and mentoring new investigators and research coordinators.
She serves as the research liaison for BCM Molecular and Human Genetics Department and Texas Children’s Hospital Genetics Administration Office. She also has been actively serving on the BCM Institutional Review Board (IRB) as a member and recently joined the University of Houston IRB as an alternate member. Recently, she was appointed as an Academic Partner with the UDN CEC (Undiagnosed Diseases Network Community Engagement Committee) Leadership. Moreover, she currently serves as the Program Manager for NORD COE (National Organization for Rare Disorders Center of Excellence) at Baylor College of Medicine (BCM)/Baylor St. Luke’s Medical Center (BSLMC)/Texas Children’s Hospital (TCH).
Alyssa holds a Bachelor of Science from University of Houston. She has attained certification through Society of Clinical Research Associates (SOCRA). Alyssa has been organizing the TCH Rare Disease Day Event since 2024 in celebration of Rare Disease Day awareness and education initiatives with NORD.
Alyssa is an active member of the Regulatory Affairs Professional Society (RAPS) and contributes as the Chair for the RAPS Houston Local Networking Group.
Medical and Molecular Research Council
Dr. Matthias Koch, Principal Investigator
Dr. Sonia Ballal, MD, PhD, Pediatric Gastroenterology
Dr. Alisa Mo, MD, PhD, Pediatric Neurology
Matthias Koch is an Assistant Professor for Biology at Texas A&M University, where his lab studies how the clinical important bacterial pathogen Pseudomonas aeruginosa interacts with the physical environment of the host to regulate its pathogenicity.
Matthias found his passion for diseases related research and medical care during a communi
Matthias Koch is an Assistant Professor for Biology at Texas A&M University, where his lab studies how the clinical important bacterial pathogen Pseudomonas aeruginosa interacts with the physical environment of the host to regulate its pathogenicity.
Matthias found his passion for diseases related research and medical care during a community service gap-year after high school at the University Hospital in Freiburg, Germany.
Matthias started his career by exploring the world of astro physics, particle physics, and computer science, which earned him a MSc in Physics. Intrigued by the world of microbes and the molecular processes in the cell, he went on to apply his knowledge about physics to biological systems, for which he received a PhD with summa cum laude in Biophysics at the Department of Microsystem Engineering at his home university. He finally fostered his love for biology and diseases related work during a Postdoc in the Department for Molecular Biology and the Lewis-Sigler Institute for Integrative Genomics at Princeton University, where he made the remarkable discovery that bacteria have a sense of touch similar to humans to regulate their virulence related genes to their mechanical environment in the host.
Matthias has received numerous conference awards, the Wolfgang Genter Early Career Award for his PhD thesis, a National Institute of Health (NIH) Maximizing Investigators’ Research Award (MIRA), and published his work in prestigious journals such as Science, Nature Photonics, Nature Microbiology, the Proceedings of the National Academy of the Sciences of the United States of America (PNAS), and more.
Dr. Alisa Mo, MD, PhD, Pediatric Neurology
Dr. Sonia Ballal, MD, PhD, Pediatric Gastroenterology
Dr. Alisa Mo, MD, PhD, Pediatric Neurology
Alisa Mo received her M.D., Ph.D. at Johns Hopkins University School of Medicine in Baltimore, Maryland and is currently a Child Neurology resident at Boston Children’s Hospital. She is interested in better understanding the genetic and epigenetic basis of neurodevelopmental diseases, with a particular focus on defects in chromatin-related genes.
Dr. Sonia Ballal, MD, PhD, Pediatric Gastroenterology
Dr. Sonia Ballal, MD, PhD, Pediatric Gastroenterology
Dr. Sonia Ballal, MD, PhD, Pediatric Gastroenterology
Boston Children's Hospital
Divisional Wellness Officer; Associate Director, Fecal Microbiota Transplantation; Attending Physician, Division of Gastroenterology, Hepatology and Nutrition, and
Assistant Professor of Pediatrics, Harvard Medical School
Dr. Bernice Morrow, PhD, Pediatric Cardiology
Dr. Sonia Ballal, MD, PhD, Pediatric Gastroenterology
Dr. Sonia Ballal, MD, PhD, Pediatric Gastroenterology
Albert Einstein College of Medicine Professor, Department of Genetics
Professor, Department of Obstetrics, Gynecology and Women's Health
Professor, Department of Pediatrics (Pediatric Cardiology)
Sidney L. and Miriam K. Olson Chair in Cardiology
Director, Division of Translational Genetics, Department of Genetics
Faculty Advisor, Genomics Core, Department of Genetics
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